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Happy sweet 16th

This year would have been your 16th birthday – where did that time go?

I’d planned to celebrate the day with grandma zoey & Leigh but zoey had her usual ‘drama’ so it was just gran and me. Zoey Leigh & myself decided to release some balloons in one of your favourite spots but of course I couldn’t find it. Your dad usually drove us. We managed to find somewhere nice and I also released some of your ashes.

Leigh & I made Órla a birthday cake
Release some of Órla’s special balloons and a sweet 16

Miss you so much darling xxxxx

6 years

I really can’t believe it’s 6 years tomorrow since you left us.

There’s not a day goes by that your sister Zoëy & myself don’t share your name and even her little son Leigh talks a lot about his aunty Órla in heaven and I love him a little bit more every time he picks up a feather as says ‘oh look grandma it’s aunty Órla.

I so wish you could meet him and he you but it was not meant to Your mummy looks so different to you used to see her. I’ve lost over 13 stone that’s like another whole person. I now would have the energy to push you around and carry you. God I wish I could do that now. I’m off next week to an operation to get rid of my baggy skin and I’m excited and terrified at the same time but keep thinking what’s the worst can happen I could die but I get to you my little bubba if I do so I’m not going to be scared.

It seems fitting that the new me will be emerging at this sad time of year.

I don’t write too often these days because I simply cannot write anything to you without ending up upset and I try not to dwell too much.

This time every year since you’ve gone is a countdown of terrible memories that I wish I didn’t have but there also the last previous days we had with you.

Sleep tight my little princess, my beautiful Órla Rose ❤️

Miss this cheeky little face ❤️

Forever Órla Rose’s Mummy ❤️

Missing you

This post somehow didn’t get published so I’m doing it now 6 months later.

I miss you so much darling, it’s scary that the years without you are flying by and lots of new memories are without you by my side. I wish I had new adventures of you to post and new birthdays instead of reposting old photographs of you. I wish Leigh had real memories of you and not just stories told of aunty Órla in heaven.

The new breakthrough drug for cystic fibrosis patients has finely been approved by the NHS in Northern Ireland which is bittersweet but then because of your autism you weren’t good at taking your meds were you my pet, so it probably wouldn’t have saved you.

Why is life so cruel? Why you?

Your great granny mullins passed away last month, but you know that don’t you cause she’s with you and grandad now. We went to her months mind of Saturday and the priest was talking about believing in the afterlife and heaven. He mentioned about how some souls are taken earlier than others (granny was 100) and he believed that it was because they had already done their job and their presence had influenced enough people already that their job was done earlier.

I liked that idea, that you had such an affect on peoples lives when they met you that your job on earth was done quicker than most. I do know you taught me and cece how lucky we are to have life and to be grateful for it. How important family is and how we must treasure everything and everybody around us because no one knows when we just might be taken away.

I love you so much darling.

Missing You

I dreamt of you last night my darling. I miss you so much each and every day.

I visited aunty Celine in Canada last week and seeing your cousin Delaney who is 2 weeks younger than you made me realise how grown up you would be now as a fifteen year old. I can’t believe it’s been five years already.

I’ll be decorating my Órla tree this week with Christmas angels and other bits that remind me of you and I’ll have it lit throughout Christmas.

I miss you so much buba.

Wedding plans

So today I’m planning bits of my future wedding day and it’s so important to me that Órla is involved throughout the day.

Roses have always been one of my favorite flowers so when I gave my eldest child Zoey (who was 9 years old at the time), the choice of middle name for my expected baby I was thrilled when she chose Rose.

When Órla was taken from us too early I constantly referred to her as Órla Rose. Suddenly I had to be surrounded by all this roses. I spread rose petals in her coffin covering her body. I had bunches of roses in vases in the room she rested in until it was time for her body to leave. My bedroom wallpaper is roses as is my bedspread. The first gift my fiancée gave me was a single rose.

So needless to say our wedding invites will be adorned in roses, our family unity candles are being designed with roses on them, our table decorations will be circles of roses and of course my bouquet will be roses.

I want to have her there with me throughout the day and when choosing our songs for the evening the Dj informed me he uses a huge screen for displaying pictures whilst a song is being played, it was then that I remembered Órla’s favourite song to sing was shine bright like a diamond by Rihanna. In fact I remembered her singing it so much I knew I had a recording of it on her iPad. When she had flown home it was one of the pleasures discovering 4 short videos she had made herself a few months before she left us.

I said this to the dj and he said he could add her voice to the song during the chorus whilst playing the song and some pictures clips on the screen. I got so excited at the thought that I was going to hear her on my day and dance to her favorite song.

Today I went to search out her video clips only to find that it was obviously in my mind I could hear her sing the song and not that she had recorded it at all, how could I have got it so wrong? I can hear her sing it right now …..

Five years on and it still cuts like a blade and I’m still discovering new hurts. I really wish she could be there with me physically and not just in spirit.

Till we meet again bubba❤️

Life goes on and on …..

It’s been a while since I’ve posted so I thought as it’s just past your 5th angelversary I’d write about how life is 5 years on from losing you.

I still miss you every minute of everyday, I can’t imagine that ever changing but the rest of my physical life continues as if nothing is different, my physical presence does the same things I still watch tv, visit friends, go on holidays.

I’ve moved home 3 times since you went to heaven. At the end of last year I sold the home I bought to raise you girls in, the house you had most of your firsts in – first walk, first birthday party, first cot, first big girl bed, first swing, first dog, first day at school, first tooth fairy so many firsts but also memories of all your lasts, last cuddle, last kiss, last fight, last breath.

Órla’s first day home

Órla’s first birthday

It was a big decision to let go of this house, I had moved out to live with grandma a year after you’ve passed and your sister lived there with her baby son. Then I met jim and moved into a rental but i knew eventually we wanted to buy a house together and so made the decision to sell. To be honest it was easier than I thought I felt I was making a fresh start and leaving all the bad memories of the house behind – you did spend your last days suffering in that house and our fun front room turned into your dying room and your morgue. All the happy memories were tucked already deep inside and I struggled to see them, now the house is gone I’m remembering the happiness the house had rather than the sadness.

Ironically your sister now rents 5 doors down the road so I still see it every week but it doesn’t pull me down in the same way – I don’t have the ‘what if’s’ anymore.

I’ve travelled more than ever and seen so much of this beautiful world. I’ve made new friends and had new adventures, I’ve welcomed a grandson into my life and 3 beautiful grandchildren from Jim’s son. So life has been busy and ongoing

BUT

The pain in my heart is still there, the pain doesn’t ever reduce and I don’t imagine it ever will. I cope, I get by, I don’t feel the urge to join you right now as I did at the beginning of this journey, although I have no fear of death whatsoever if it means being with you again. I’m happy to be patient and wait I know my time will come when we will be reunited. Some days are harder than others but I try to remind myself that you were in a lot of pain in this world especially at the end, I also remind myself that grandad is there with you so your not alone.

I can’t imagine what it must be like for moms and dads who lose perfectly healthy children in a horrific accident or in an act of violence knowing they had a whole happy healthy life ahead of them. I got used to compromising and changing my expectations when you were first diagnosed with autism at 4 years old, life for you was going to be testing to say the least and then when they diagnosed you with CF we adjusted to accepting life may be shorter and we lived everyday as if it was the last.

I’m so glad I gave up work to spend more time with you, I’m so glad I took you out of school as you hated it so much and I’m forever grateful for the special holidays we had together before things got really bad. I’m so lucky to have had you in my life with your quirky ways and deviously funny nature. We shared such a close bond and that will never change. I’m blessed with being able to hear your voice and looking at your homemade videos when I feel able to.

Our last happy holiday

I wish things could have been different and you could have lived a happy healthy life, gone to college and fulfilled your dreams. I would have been so happy to see you on your wedding day and be by your side when you gave birth to your children but it wasn’t meant to be. God had a bigger plan for both you and me and I have to trust in this.

That is what keeps me going and keeps me strong I’m determined not to waste the life I still have and with every breath I want to keep reminding people about you and how brave and strong you were. I don’t ever want a day to go by when I don’t say your name or think of your beautiful face or funny voice.

And so I will continue

Until we meet again Órla Porla my little bubba

Love mom

XXXXX

Happy 14th birthday

Monday would have been your 14th birthday here on earth instead it is your 5th birthday in heaven away from us.

The years have flown by my darling but I’m trying so hard not to let the memories fade. I talked to your daddy today on FaceTime and although we didn’t actually talk too much about you it was nice to have the connection with him on your birthday. Everybody else has forgotten, well except for CeCe of course she couldn’t ever possibly forget the day her courageous annoying sister arrived into her world.

Although tears were shed early that morning most of my day was spent remembering happier times, your birth, feeding you for the first time that first precious night I spent with you. Such beautiful memories I will treasure forever.

I wish we had time for more happier memories to make but time was not on our side. My tears are starting to fall again and I really don’t want this to be a sad post so I’ll sign off with ’till we meet again’ love you bubba ❤️

All my love mom