Tag Archive | cystic fibrosis

I forgive him

Today my darling Órla I’m writing to tell you I forgive him – your dad

 I’ve spent so much of the last 3 years (and probably before that) blaming him for my losing you.  Now I know that sounds ridiculous as you died from Cystic Fibrosis and your Autism attributed to its decline so it’s not as if he had anything personally to do with it – right?

Although if I’m being factual here both your dad and I had the gene that carries CF and therefore we are both to blame for giving you that horrible disease. 

No I’m not talking factual, I’m talking about the day (or indeed days) your dad promised me he had not been unfaithful and as I didn’t believe him I asked him to swear on your life and he did.  

Of course we know now that firstly,  he doesn’t believe in God and therefore the swear meant absolutely nothing to him, and secondly, it was one of the first of many lies throughout our marriage.  What he did know was how I judged his response on my belief and my faith and him knowing how much I believed.

I suppose I needed someone to blame, someone to feel angry with.  It is said that people turn from God at times of grief but for me he was my only link left to you and I needed to stay as close as possible to him if I was ever to see you again – so I turned on your dad.

From the very second the light went out in your eyes I hated him with a passion, I wanted him to have no part in your funeral, I could barely stand to have him in the house.  I turned my back on him and didn’t see him again in nearly three years.  Years we could of helped each other grieve OR NOT we will never know I never gave him the chance but thankfully I also had family and friends and two lovely therapists to help me get through it.

I now feel it’s time to let go of my anger and to be grateful we both have come out the other side albeit it broken and torn were still here when your not.

It was on your third anniversary that I reached out as I knew no one else in this whole world was feeling as I was during those hours except your dad and I.  I missed you so much it physically hurt every bit of me.  

It felt good talking about you, remembering you together.  You are our precious baby and nobody could love you more than your mom and dad.  I felt a great relief as if you were happy with me, and your dad said it helped him too.  Maybe one day I’ll be able to meet him again and remember the happy times we had with you.  I love you my bubba and continue to miss you every waking moment.

Till we meet again xxxxx

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Cystic fibrosis collection

Last week I arranged a bag pack in our local tesco store in aid of Órla’s memorial fund which goes to The Cystic Fibrosis Trust.  It was a bit scared because although I had helped in many bag pack I hadn’t organised one myself.  I felt it was a bit like organising a party where your not really sure who will show up and whether it will be a success or a flop.

When I first asked my friends I got a lot of yes of course n definitely some check nearer the time but I was confident I would have at least 10 plus people to help me out.  I didn’t want to take up too much of their time so I decided to collect during the hours of 4pm – 6pm which I hoped on a Friday evening would be pretty busy.

When the day arrived I was let down by several people (not naming names) and it really showed me who my real friends are.  I learnt a valuable lesson from this task one which I will not forget in a hurry.

We managed to raise a lovely £700 towards Órla’s memorial fund which I was so grateful for and I chatted to some really lovely people along the way. The public’s generousity never ceases to amaze me.  I got to talk about Órla a lot which always makes me happy.

Would I do it again? Yes definitely.


orlarose.muchloved.com

Easter Sunday

Another first for our family without órla, I try to carry on the day as normal preparing the turkey & ham, oh how órla loved her turkey and roast potatoes. I go to mass and see all the pretty children dressed in their smart clothes and the odd Easter bonnet.  I’m trying to concentrate on the true meaning of Easter, of Christ suffering on the cross for our sins, of his resurrection on the third day but all I seem to be able to focus on is the little girl sitting across from me in her mother’s arms.  She offers me a shy smile then cuddles into her mummy for reassurance and security and it dawns on me that I will never cuddle órla in my arms again, never being able to offer her that comfort and security that every child deserves.

I’m aware of the complete irony of that statement as I’m sitting here in God’s house and worrying about my child feeling insecure when I know deep down that she is free from pain and any other physical emotions that are negative.  Of course she misses me but she is with our Lord, our saviour how could she ever feel unsafe or insecure again with God’s arms wrapped around her.

Maybe its my selfishness that I won’t get to cuddle my baby girl again that I can’t give the comfort I so desperately need to give again.  I have to accept that this Easter there will be no Easter egg hunt, there will be no Easter egg buying and there will be no Easter hugs from my ÓrlaRose.  This is my new world.  This is the world I have no choice but to accept from now on.

Happy Easter my brave & beautiful girl.  Mummy misses you so much. Xxx

 

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